The Foundation

The SMA Foundation was the brainchild fo Max Brault, a long time sufferer of Spinal Muscular Atrophy. Max realized that information, resources and development of therapies which might prevent others from suffering the same fate, are hard to find and under supported. And that is why he created The Max Brault SMA Foundation.

Our Mission…


We bring awareness to a disease which affects 1 in every 8,000 people.


We are focussed on raising awareness around the world about SMA.


We are developing initiatives to help those who are suffering from SMA.


There are many Frequently Asked Questions regarding Spinal Muscular Atrophy and all of it’s complications. We will address a few of the main one’s here, but we encourage you to follow your investigation to other parts of the Internet where you will find answers to many technical inquiries.

What is Spinal Muscular Atrophy?

Spinal Muscular Atrophy is a genetic disorder. which affects approximately 1 in every 8,000 people. Its root cause is the loss of motor neurons in the spinal cord. These neurons are responsible for controlling our muscles.

Where Does SMA Come From?

Spinal Muscular Atrophy is a genetic disorder which is handed down through generations. One faulty gene comes from the mother and the other comes from the father. Carriers don’t develop SMA, but there is a 1 in 4 chance that two carriers will have a child with SMA.

What Does Atrophy Mean?

With time, skeletal muscles become weak, or atrophy, and are no longer able to support the spine properly. Eventually this will affect all of the muscles in the body.

Are There Different Types of SMA?

Spinal muscular atrophy affects 1 per 8,000 to 10,000 people worldwide. Spinal muscular atrophy type I is the most common type, accounting for about half of all cases. Types II and III are the next most common and types 0 and IV are rare.

Is SMA preventable?

SMA is an inherited disease. If you or your partner carries the mutated gene that causes SMA, a genetic counselor can explain the chances of your child having SMA or being a carrier.

You may be able to take steps before pregnancy to lower the risk of passing on SMA.

Is There a Cure?

Although there are many advances in research and science, the numbers of affected people worldwide are too few to get the resources and research that are required to prevent and treat this disease. But work does continue slowly, and gene and disease modifying therapies continue to give hope.

We would like to thnk all of the people who are wroking didigently in the background of this Foundation to help us realize our goals.
Max Brault

Max Brault


Max has focused on employment equity and workplace accessibility
for people with disabilities.

Dean Emerick Headshot

Dean Emerick

Digital Strategist

He is an expert in digital communications, organic SEO and all facets of online marketing.

Get in Touch

Because we really want to hear from you....

Find us (Not Quite) at the office

You will find us working diligently from remote locations across the National Capital Region of Ottawa, ON. But do send a message. We would love to hear from you. 

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